Category: Archived Posts
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hospitalized during a pandemic.
May is rapidly coming to a close and man has it been a month. As I’ve mentioned May is Ehlers- Danlos Awareness month. I started out this month with high hopes of creating content in order to bring awareness to this rarely talked about disease. Little did I know that EDS would be creating its…
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it took me 9 years to get a diagnosis.
My journey to diagnosis with EDS is not unexpected for this disease. My experience with my diagnosis of EDS is not surprising for this disease. My story with EDS is uniquely mine and is constantly evolving. I do not find hope or trust from this diagnosis, but I find hope and trust in the one…
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why awareness matters to me.
May is Ehlers Danlos awareness month. If you follow me on social media or even read this blog, then you’re going to hear about this disease a lot this month. I bring awareness to EDS not because I want sympathy, but because I want empathy. I don’t necessarily want your empathy for myself, although I…
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miraculous healing.
People often ask, “When did all the health struggles start for you guys?” You’ll be surprised to know that our family’s health saga didn’t begin with my mom or me. In fact, our journey began when my dad became gravely sick with bacterial spinal meningitis. If you know my dad at all, then you know…
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the best is yet to come.
I have struggled with depression since I was in middle school. The jury is still out on whether or not my depression is clinical or situational. If you evaluate the amount of time that I’ve been dealing with my depression, then it looks more clinical than situational, being as I have dealt with depression for…
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you are significant.
“For you created my inmost being; you knit me together in my mother’s womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. My frame was not hidden from you when I was made in the secret place. When I was woven together in the…
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finding certainty in an uncertain world.
If you’ve been on social media at all during this shut-in time, then you’ve probably seen a post or a hundred posts about people’s goals during the next unknown amount of time. Maybe you’ve even seen the posts about what you should be doing during this time. I’ve been “encouraged” to put my focus on…
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He’s got this and He’s got you.
I have this little habit of organizing physical things when I can’t organize the intangible things in my life. When I was in middle school my counselor told me that she thought I had obsessive-compulsive disorder. My school binders were fastidious in every account, from the way the labels had to be on the binder,…
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peace over panic.
Let’s talk about the elephant in the room/world right now, Coronavirus. Like most of the world, I wake up every day waiting to hear what the current damage report reads. I think most of us are aware that this pandemic is evolving rather quickly around the world. Just yesterday the news of the first confirmed…
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surrounded.
At this point in my journey, I was completely and utterly drained, besides my own health predicament mom had just found out that her second fistula (the thing that we need to work in order for her to get plasmapheresis and stay out of crisis) had failed, my Grandmom who had come all the way…
