Category: 2020
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bitten by a snake.
“Once safely on shore, we found out that the island was called Malta. The islanders showed us unusual kindness. They built a fire and welcomed us all because it was raining and cold. Paul gathered a pile of brushwood and, as he put it on the fire, a viper, driven out by the heat, fastened itself on his hand. When…
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tricks to tackle a doctor’s appointment like a professional patient.
Last week on Instagram I mentioned having a “pre-game/pre-appointment” ritual. I would say everybody has things they do to prepare for the regular things in their lives such as work, school, meals, or whatever it may be. One of my regular things in life happens to be doctor’s appointments. Going to the doctor frequently comes…
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how to lay down your fears in 5 steps.
paralyzed by fear. Fear is always looming around us and if we are not vigilant we can easily find ourselves paralyzed in its grips. Fear has always been something that I’ve had to battle. If there were recordings of my prayer time, you would see that for 22 years, almost daily, I have had some…
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is exhaustion our new normal?
ice cream with a friend. Yesterday I met a friend in downtown Kansas City. After finding a table outside that was socially distanced from those around us, we disinfected the table and ourselves, pulled down our masks, and began to chat while eating our melting ice cream from the 90-degree heat. It seemed like such…
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why my portacath isn’t my lifeline.
On Monday I had my second life-saving device put into my body. The catheter from my port goes into my heart and provides direct access for medications into my bloodstream. I had my previous port for almost 3 years and I watched that device save my life multiple times. Unlike most of my other surgeries/scars…
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2 ways to keep from falling into the abyss of feeling overwhelmed.
God didn’t promise us that this life would be easy or without its trouble, matter of fact, He promised us the opposite. You are not alone and you are not “less spiritual” because you face trouble. Although your trouble is uniquely yours and my trouble is uniquely mine, the fact is that we all have…
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31 days with ehlers-danlos syndrome.
I am indeed in pain 24 hours a day, 365 days a year. On an average night I wake up 2-3 times in pain and there’s never a moment in my life that I’m not in physical pain. Some days are worse than others, but I am thankful for the bad days because they reveal…
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hospitalized during a pandemic.
May is rapidly coming to a close and man has it been a month. As I’ve mentioned May is Ehlers- Danlos Awareness month. I started out this month with high hopes of creating content in order to bring awareness to this rarely talked about disease. Little did I know that EDS would be creating its…
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it took me 9 years to get a diagnosis.
My journey to diagnosis with EDS is not unexpected for this disease. My experience with my diagnosis of EDS is not surprising for this disease. My story with EDS is uniquely mine and is constantly evolving. I do not find hope or trust from this diagnosis, but I find hope and trust in the one…
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why awareness matters to me.
May is Ehlers Danlos awareness month. If you follow me on social media or even read this blog, then you’re going to hear about this disease a lot this month. I bring awareness to EDS not because I want sympathy, but because I want empathy. I don’t necessarily want your empathy for myself, although I…
